Chronic Kidney Disease Resource Guide

This compilation of evidence-based recommendations, tools and resources has been created to assist providers and other healthcare professionals who screen for, diagnose, and manage individuals with chronic kidney disease (CKD) to slow its progression and/or prevent end stage renal disease (ESRD). Each section of the toolkit is broken down by consumer and healthcare team and contains fact sheets, tool kits, and helpful resources.

The information and resources provided come from a number of national and state-level organizations listed below.

Centers for Disease Control and Prevention Chronic Kidney Disease Initiative
Chronic Kidney Disease Surveillance System
National Institute of Diabetes and Digestive and Kidney Diseases
National Kidney Foundation

Local/State

National Kidney Foundation of Indiana

National

Fact Sheets

Consumers

Chronic Kidney Disease in the United States, 2021 – This Fact Sheet from the Centers for Disease Control and Prevention contains statistics such as the prevalence of CKD, estimates according to age, sex and race/ethnicity, risk factors, prevention, and treatment.
Chronic Kidney Disease: Common – Serious – Costly
Chronic Kidney Disease – Healthy People 2030
Data Snapshot – March 2022
Kidney Disease Education Coverage
Medicare and You Handbook 2022

Managing Your CKD

7 Keys to Success: Kidney-Friendly Eating – Following a kidney-friendly diet can be overwhelming but watching what you eat and drink will help you stay healthier. This infographic gives you seven tips to overcome some of the challenges of living with a restricted diet.
AAKP Nutrition Counter: A reference for Kidney Patients – Within this pocket-sized brochure are nutritional values for standard portions of more than 300 commonly used foods, as well as menu items from 11 fast food restaurants. This 36-page brochure is an excellent guide for kidney patients who wish to develop a proper meal plan.
American Association of Kidney Patients Kidney-Friendly Recipes – The team at AAKP have created recipes for individuals at all stages of kidney disease and with different dietary needs.
National Kidney Foundation Recipes – Nutrition is key to managing kidney disease and your overall health. Visit the National Kidney Foundation website and find a recipe that is right for you.
Healthy Kidneys are Happy Kidneys – This infographic from the Centers for Disease Control and Prevention contains facts and tips about Chronic Kidney Disease. | Spanish Version
Pocket Guide to Managing Kidney Disease – The Pocket Guide is a tool to help patients and caregivers have more effective dialogue with their healthcare teams. It includes 5 Key Questions to ask your doctor/medical specialist, as well as additional questions for each stage of Chronic Kidney Disease.
Take Care of Your Kidneys and They Will Take Care of You – Diabetes can cause kidney disease, also known as chronic kidney disease (CKD). The good news is that there is a lot you can do to prevent kidney problems, including keeping your blood sugar and blood pressure under control. This handout from the Centers for Disease Control and Prevention highlights what happens if you have kidney damage, how you know if you have kidney problems, what steps to take if you have Diabetes, best way to keep your kidneys healthy, and how you can prevent kidney failure. | Spanish Version
Know Diabetes by Heart: Heart health – The Link Between Type 2 Diabetes and Chronic Kidney Disease
Your Kidneys & How They Work
Coping Living and Thriving with Kidney Disease Brochure | Spanish Version
Food Label Brochure
Build a Healthy Eating Routine as You Get Older | Desarrolla una rutina de alimentación saludable a medida que envejeces
Make Healthy Drink Choices | Escoge bebidas saludables

Providers/Healthcare Team

CDC Vital Signs January 2017 Native Americans with diabetes: Better diabetes care can decrease kidney failure – Native Americans (American Indians and Alaska Natives) have a greater chance of having diabetes than any other US racial group. Diabetes is the leading cause of kidney failure, a costly condition that requires dialysis or kidney transplant for survival. Kidney failure can be delayed or prevented by controlling blood pressure and blood sugar and by taking medicines that protect the kidneys.
CKD Risk Assessment Tool – CLASSIFY patients with chronic kidney disease (CKD) based on Cause (C), GFR (G), and Albuminuria (A). CONSULT the “CKD Risk Map” to help evaluate patients by GFR and albuminuria categories.
Kidney Disease Can be Treated – Kidney disease does not happen overnight. It happens slowly over many years, and in stages. There are five stages of kidney disease. In each stage, the kidneys don’t work as well as the stage before. With treatment and lifestyle changes, you can help slow or stop your kidney disease from getting worse.
Nephrotic Syndrome A Guide to Educate Your Patients – To be used in conjunction with the Patient Tear Off Pad “Nephrotic Syndrome: What You Need To Know”, this talking points card is a reference guide that clinicians can use to educate their patients about the subject of Nephrotic Syndrome.
Chronic Kidney Disease (CKD) Surveillance System
Heat Map Card
Data Highlight NO.20 October 2020 Updated September 2021
Identify & Evaluate Patients with Chronic Kidney Disease
Practice Pearls | Educational Resources | Publications & Resources | Chronic Kidney Disease Initiative | CDC

Toolkits

Consumers

Family Reunion Kidney Health Guide – Family reunion planners – or anyone planning or attending a reunion or family gathering – can use this guide from the National Institute of Diabetes and Digestive and Kidney Diseases to help make kidney health a family affair.
Kidney Beginnings: A Patient’s Guide to Living with Reduced Kidney Function – This 62-page book created by the American Association of Kidney Patients addresses the concerns of those at risk for kidney disease and their family members. The book features information on the kidneys and how they work, diabetes, hypertension, various medical tests, emotional issues, common medications and much more. It provides patients and family members with answers to questions about the health of their kidneys, diet and overall lifestyle.
Kidney Sundays: A Toolkit – Health ministry leaders – or anyone interested in bringing health programming to their congregation – can use this toolkit from the National Institute of Diabetes and Digestive and Kidney Diseases to help make the kidney connection. Companion Slides
Understanding Anemia of Chronic Kidney Disease – This brochure created by the American Association of Kidney Patients helps you understand what anemia means, why it’s important and the most effective treatment methods.

Providers/Healthcare Team

Chronic Kidney Disease Change Package – The contents of this document from the National Kidney Foundation represent a list of suggested process improvements that ambulatory care can utilize to improve chronic kidney disease (CKD) screening, recognition and management. This also includes discussion of these change concepts and change ideas taken directly from interviews with teams that have integrated CKD care into ambulatory care settings. This document follows the format of the Million Hearts Hypertension Change Package in compiling change concepts, change ideas, evidence- or practice-based tools and resources
Chronic Kidney Disease Disparities: Educational Guide for Primary Care – This guide from Centers for Medicare & Medicaid Services (CMS) and Office of Minority Health (OMH) is written for primary care practice teams and is intended to raise awareness of disparities in CKD and improve the care of vulnerable patients with CKD, and suggests possible approaches to improve the care of vulnerable patients with CKD.
Connected Care Toolkit
Dietary Guidelines for Americans, 2020-2025
National Kidney Month Toolkit
Physical Activity Guidelines for Americans, 2nd edition
Quick Reference Guide on Kidney Disease Screening | National Kidney Foundation
App Center | National Kidney Foundation